Pamela Wilson, Special Needs Children Editor of the Bella Online website, which bills itself as the second-largest women's website in the world, offers a link to Down syndrome advocacy on Twitter, and further thoughts on our discussion of whether Down syndrome needs a "cure."
We really don't know what choices we would make if a safe, effective “cure” was developed for the range of intellectual disability found in most individuals with Down syndrome. Looking at the history of 'treatments' for children with Down syndrome concocted in the past quarter of a century would make any parent hesitant to embrace a new version of what 'scientists' call a cure. The thought of giving pharmaceuticals of any kind to newborns, young babies or children is distressing to most parents, especially since those being considered in current research are known to have serious side effects in teens and adults. Previous treatments with supplements considered helpful by sales representatives have not been shown to be effective. It’s likely that any “cure” will have one or two false starts — as one dad mentioned, these are probably the same folks who once thought LSD was a great treatment for people with schizophrenia. Most parents of individuals with Down syndrome do not share a culture of disability with their sons and daughters.
Continued after the jump
02 December, 2009