Bomber LeBlanc’s last act of defiance

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Mary Cecilia “Bomber” LeBlanc, shown above with L’Arche assistant Mavis at the 2007 Cape Breton Island Film Series party for l’Arche Cape Breton, died peacefully Thursday morning in her home at The Vineyard, a L’Arche residence in Orangedale, surrounded by friends and caregivers.

Death came six days before her 60th birthday, and, incredibly, hours before a provincial health bureaucrats were to meet to begin planning her involuntary removal from l’Arche, over protests of family, friends, and caregivers.

Mary was a small woman with a steely will and an outsized capacity for getting her own way—and then leading a chorus of laughter about the outcome. Deaf from birth and without speech, she was orphaned at age three and spent 30 years in institutional care before finding a new life at l’Arche, where she lived for the last 27 years.

In her eulogy at Sunday’s funeral, l’Arche Community Leader Jenn Power* described Mary as “a silent woman who spoke volumes.”

[C]learly, somewhere along the line, she made a decision: that she would not let the circumstances of her life define or limit her; that she would stand up to those who tried to keep her down and say, albeit without words, “You’re not the boss of me.” In the disability world today, there is so much emphasis on self-advocacy. Truly, Bomber was a self-advocate before her time….

Mary’s death was her final act of defiance. For some months now, we have been in discussions with the Department of Community Services about whether Mary’s needs would be better met in a nursing home. Her family and her community were strong advocates for supporting Mary in her home at The Vineyard. And yet, the process was moving forward. On Thursday, November 4th, Mary’s case was being heard, and it seemed obvious that she would be placed on a waiting list for nursing home care. Instead, on Thursday, Mary died — the first thing in her life she ever did in a hurry. A pretty powerful act of self-determination.

To the officials involved, this is, I am sure, a complex issue, replete with rules, protocols, standards, evaluations, criteria, and, no doubt, budgetary considerations. Yet the meeting that would decide Mary’s fate allowed for no participation by her family, her guardian, her community, or her friends—let alone by Mary herself.

Here is an issue where Health Minister Maureen MacDonald could show leadership by deliberating on some fundamental questions: Must every death be medicalized? Do Nova Scotians have the right to choose to die at home among those who love and care for them—even, and perhaps especially, Nova Scotians with disabilities?

* Disclosure: As regular readers know, Jenn Power is my daughter-in-law; my son Silas, Jenn’s husband, also works at l’Arche Cape Breton.

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