Huffington Post's Canadian edition yesterday published an investigative report by a team of student journalists from the University of King's College detailing the housing crisis facing Nova Scotians with intelectual disabilities. There is not enough room in the system for all of the people who need a place to live. They languish on waiting lists that are hundreds of names long. Their families, in turn, must support them with scant financial, caregiving or community programming resources. Eventually the families get too old or sick to do it, making the situation for their relatives in rehab even worse. With so little room, placements...

The late Janet Moore, the founder of l'Arche Cape Breton who was profiled here on her death in 2010, was a huge fan of Rita MacNeil. Janet's friend Mary MacDougall arranged for the two to meet at Rita's Tea Room on her 60th birthday, in 2007. Jenn Power, Atlantic Regional Co-ordinator for l'Arche (and my daughter-in-law) described the event on her blog. Those of us who love Janet were more than a little apprehensive as we prepared for the celebration. Janet is getting old, and showing her age. As with so many people with Down Syndrome, dementia is slowly creeping in and stealing...

When people learn that my son Silas and his wife Jenn Power adopted a pair of identical twins with Down Syndrome, they often say one of two things: "I could never do that," or "You must be saints." I love Silas and Jenn beyond measure, and admire them hugely, but I can attest they are not saints. The explanation for their decision to adopt Josh and Jacob lies elsewhere. As members of the L'Arche Community in Iron Mines, Orangedale, and Mabou, Cape Breton, Silas and Jenn have lots of experience working and living with developmentally disabled people. It's what they like doing,...

Mary Cecilia "Bomber" LeBlanc, shown above with L'Arche assistant Mavis at the 2007 Cape Breton Island Film Series party for l'Arche Cape Breton, died peacefully Thursday morning in her home at The Vineyard, a L'Arche residence in Orangedale, surrounded by friends and caregivers. Death came six days before her 60th birthday, and, incredibly, hours before a provincial health bureaucrats were to meet to begin planning her involuntary removal from l'Arche, over protests of family, friends, and caregivers. Mary was a small woman with a steely will and an outsized capacity for getting her own way—and then leading a chorus of laughter about...

The five occupants of this 2008 Dodge Grand Caravan — my son, daughter-in-law, and three grandchildren — survived a head-on collision on the TransCanada Highway Thursday evening. I offer the following details in hopes that other families will find it helpful to understand the factors that decisively improved their chances of survival. Shortly before 5 p.m, August 26, my family was westbound on Route 105 in Lexington, Nova Scotia, just north of the Canso Causeway, when a severe rain squall hit the area. Daughter-in-law Jenn had just slowed down when an eastbound car apparently hydroplaned and spun across the centerline into...

Janet Evaline Moore, founder of L'Arche Cape Breton, died peacefully last night at her home in Orangedale, two days before her 63rd birthday. [caption id="attachment_5983" align="alignleft" width="250" caption="Tom and Ann Gunn and Janet Moore"][/caption] Tom and Ann Gunn invited Janet to live with their family in 1983, marking the start of an intentional community that is now home to some 25 Core Members and a varied group of assistants from Cape Breton and around the world. Janet Moore was a gentle, funny, loving woman, with an out-sized capacity to move and inspire people around her. She and her long-time...

Silas Donham responds to posts on the New York Times Motherlode blog criticizing those who would reject potential chemical treatments intended to improve intellectual function of infants with Down syndrome. This difficult topic provoked a debate here on Contrarian that was remarkably thoughtful and respectful. But when the Times picked up on our discussion, many commenters were incredulous that any parent would hesitate accept such treatments for their children. A few had nasty things to say. Silas responds: First, the disclosure: I am Jenn Power's husband, father to Jacob and Josh, and son to contrarian.ca, the blogger who got all this...

For those who have followed the debate over potential treatments for Down syndrome in the New York Times parenting blog Motherlode to its source here on Contrarian, I have assembled a series of links you might want to follow. Our discussion of this issue began with this post back in November. Jenn Power elaborated on her concerns here, and Dr. Ahmad Salehi, the Stanford researcher whose work touched off the discussion, responded thoughtfully here. Jenn's husband Silas Barss Donham, my son, weighed in here. Other reader commented here, here, and here. Jenn is the community leader of L'Arche Cape Breton in Iron Mines,...

Motherlode, a New York Times blog on parenting, has picked up on Contrarian's discussion about potential treatments for the intellectual impairment associated with Down syndrome — and touched off quite a debate of it its own. Our own discussion began with L'Arche Cape Breton Community Leader Jenn Power's disquiet at the assumption that Down syndrome constitutes a disease in need of curing. Jenn, who is both the adopted mother of identical twins with Down Syndrome and — disclosure — my daughter-in-law, spoke eloquently of Down traits that don't need fixing: [I]ncredible smiles, overflowing affection, stubbornness, great sense of humour, cute toes, love...